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I met Jessica at an Arizona Hemophilia Association in the first month that we landed in Tucson. She worked for industry at the time and she was just so genuine, we instantly connected. She knows so many people in the community, it has been wonderful knowing I can call on her to introduce me to people or help me find a resource.
I personally like it when Hemo moms or Hemophiliacs work in industry. They get me. I am savvy enough to separate what they do for a living from who they are as a member of the community. I know there are some bad apples out there. So when you can find someone you connect with, no matter who they work for, try to work on the relationship because you never know when the people that cross your path are there for a reason.
Many of the moms that work in industry are some of my closest friends. As we are making decisions for our kids, we take in all the information from the HTC, our friends, family and other moms, but the ultimate decision is with the parent. I was always second guessing myself in the beginning. Thankfully, there is a great network for moms to rely on. Make sure you have a good group of experienced moms in your Hemo Tribe. Jess is part of my tribe.
Jessica is a great resource for you if you have questions or just want to have someone who will listen to you without any judgment. I am not on service with her and wanted you to know that I strive to bring you people and information that have helped me in my journey, no matter what they do for a living.
We talk tips and tricks, her Hemophilia journey and the lessons we have learned along the way. We both do not see Hemophilia as a negative aspect, just a fact of life. Focusing on the positive aspects of the disorder – the empowerment from being able to stand up for your kids, the friends that we would never have made, the resilience that the kids build
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