Big Giant Rebecca Episode 1

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Meet the Amazing Rebecca! Her son was finally correctly diagnosed with Severe A at age 7. He had been treated for arthritis for the three years prior to this diagnosis. Through their journey she learned several empowering lessons and has become such a strong advocate for her family. Their story is incredible and I am so in awe of her strength and optimism. I want to be just like her when I grow up!

With an active 8 year old hemo who did not grow up “with” Hemophilia, they have a whole new set of decisions and a huge learning curve that they are tackling and conquering. With a new lease on life with the prophy doses of factor, life has been so much better for everyone in the family.

She recommends that we should all trust our inner voice and stand up for our kids, and loved ones. Ask questions until you are satisfied and understand exactly what is going on with your family. My favorite Rebecca-ism: “Be a Bigger Mouth!” Her final thoughts are perfect. “Trust your instincts. It gets easier. Remember to breathe and don’t second guess yourself.”

Links to the resources and people mentioned in the pod:

Dr. Young – I think we all have a special place in our heart for this man and his amazing team at CHLA. As Rebecca says, we will be forever in his debt.

Randy Desantis – Works at Factor Support Network, (not CSL Berhing – I misspoke during the pod)

Patrick Lynch – from Believe Digi. Actor, Writer, Producer, Speaker, Advocate and All Around Great Guy.

 

Contact Rebecca at:

Twitter: BigGiantRebecca

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