Oh Hello. It has been a while. Thought I would let you know I want to hang out with you in …
Well, by now you may know that we have added Arizona to the list of states that we cover in the Hemos Unite volunteer community. This place is awesome. I have heard about the great Arizona Hemophilia Association, and was super excited to become a member of the family. The tales you hear are all true. These people are amazing. You will see from the lack of coverage that:
- I was having a great time, and wasn’t filming a lot,
- had footage with people or kids, so I didn’t want to put that on YouTube and
- My son pretty much loves his Arizona Adventures
Here a a couple of quick shot of stuff AHA did over the summer and I can’t wait to do more.
Arizona Hemophilia Association
Hemophilia Alliance of Orange County
Mauli Ola Foundation
and if you want to help us: Hemos Unite (but there are no tax incentives since I am just a mom volunteering her time and funds for the cause)
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Boom Baby! We’re back with an awesome guest. This guy has an amazing story and after you listen to this podcast, make sure you go get the full experience and subscribe to his YouTube channel.
L.A. Aguayo has Hemophilia B and has overcome some dark days to emerge as a leader, inspiration, and role model for our community. We talk Tinder, Gary Vee, Supplements, and YouTube on Episode 24.
It was truly an honor to have him on the podcast anda great way to kick off Season Two. Remember to subscribe via the annoying pop ups or the Hello Bar at the top of this page to get notified of the next podcast and to the Hemos Unite Playlist on YouTube for general Hemo Stuff happening in our little corner of the Hemo World.
Find L.A. Here:
Get Hemolife swag!!!
Send me some comments, I love to hear your stories and suggestions!
Arizona Hemophilia Association: http://www.arizonahemophilia.org/ and their Facebook Page: https://www.facebook.com/AZHemo Salsa Challenge FB: https://www.facebook.com/salsachallenge/?fref=ts San Diego (HASDC) http://hasdc.org/en/home/ Hemophilia Alliance …
This is one of the BEST Bleeding Disorder Days I have ever attended. You all know that our team (especially …
Another installment of YouTube Happenings. Please subscribe to The YouTube while you are there and give the video a thumbs up if you want more 🙂
Check it out! This awesome Facebook Group is having a Post Holiday Party and I will be there with …
I hope to see you all the my favorite charity’s holiday party! RSVP now! Spaces are running out 🙂
See what Hemos Unite has been doing lately! If you are in the Southern California area we do our own educational dinners and workshops, so sign up to be notified of our stuff!
Thanks Novo Nordisk for sponsoring our awesome dinner!
Stuff I talked about in the video:
SoCal Foundation Events – Hurry there is one this weekend! Thanks Michelle for taking over and creating all the cool stuff for the community.
Hemophilia Alliance of Orange County Donate here! You all know this is my favorite Hemo group! The surf event that they did with Mauli Ola Foundation will be going up soon 🙂 They had professional surfers come down and teach our Hemo kids how to surf!!!! Awesome!!!!!
Donate to Tubie Friends! If you don’t have one yet, this really relped my little guy feel like a regular kid with Sam his stuffed dog with a port. I donate to them every month.
Send me a request for Barb’s phone number if you want to talk to her about what you are going through. Sometimes you just need to talk. I will private message you her phone number
Season Two of the podcast will be coming soon. Click here to catch up on season 1.
Subscribe to the Hemos Unite Playlist on our YouTube
This month has been CRAZY! So much personal stuff happening, so I apologize for not talking to you in a while. Here is a little recap of the stuff we have been able to attend in SoCal. I hope this inspires you to get out and get involved in your community or a charity that you would like to support.
I truly believe that if everyone just put out just 1% more effort then they are doing, the world would get better and better. Find a cause you are passionate about and Get Involved! You will make a difference in someone’s life – I guarantee it.
Stuff coming up:
Saturday Sept 19:
Sunday Sept. 20:
Sat. October 3:
The Coalition for Hemophilia B for a meeting in Anaheim, 8am-4pm. Breakfast, lunch and snack will be provided and the kids get a day trip to Disneyland!!
Gas and tolls are reimbursed and parking is paid for compliments of the Coalition for Hemophilia B (please keep your receipts) to Register: http://coalitionforhemophiliab.org/
Save the Date for Randy’s Womens Education Days! Call her to RSVP – her number is in the sidebar 😉
Marvin’s Dance, by Silent Partner