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Dan and I are virtual buddies. We met through Facebook a couple of years ago and have attempted a podcast before. Our first try, we ended up chatting for almost 4 hours about everything under the sun. I was just fascinated about the exciting life he has created for himself.
Dan is from the States and moved to Japan several years ago. He is a soccer correspondent, amazing photographer, mosh pitter, and soon to married (yay!) with a witty and intelligent mind.
On today’s podcast, we chatted about the difference in Japanese and American bleeding disorder cultures, new drug trial and possible outcomes of the communities with all the potential of the new drugs and treatments on the horizon.
As a mom, I listened to him, and hoped that my son would have as much confidence and independence one day. As a friend, I listened to him and was grateful that we were brought together through our experiences with Hemophilia.
You can find Dan here:
Dan on Twitter
Dan’s Soccer Twitter
Big thanks to you, Dan. You are always such a joy to speak with. One of these days we will need to meet in person and raise a glass. Looking forward to our next update.
Thanks again to Shire for sponsoring the podcast. If you want more information about the Co-Pay Assistance Program, go to HematologySupport.com
Oh Hello. It has been a while. Thought I would let you know I want to hang out with you in …
Well, by now you may know that we have added Arizona to the list of states that we cover in the Hemos Unite volunteer community. This place is awesome. I have heard about the great Arizona Hemophilia Association, and was super excited to become a member of the family. The tales you hear are all true. These people are amazing. You will see from the lack of coverage that:
- I was having a great time, and wasn’t filming a lot,
- had footage with people or kids, so I didn’t want to put that on YouTube and
- My son pretty much loves his Arizona Adventures
Here a a couple of quick shot of stuff AHA did over the summer and I can’t wait to do more.
Arizona Hemophilia Association
Hemophilia Alliance of Orange County
Mauli Ola Foundation
and if you want to help us: Hemos Unite (but there are no tax incentives since I am just a mom volunteering her time and funds for the cause)
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Boom Baby! We’re back with an awesome guest. This guy has an amazing story and after you listen to this podcast, make sure you go get the full experience and subscribe to his YouTube channel.
L.A. Aguayo has Hemophilia B and has overcome some dark days to emerge as a leader, inspiration, and role model for our community. We talk Tinder, Gary Vee, Supplements, and YouTube on Episode 24.
It was truly an honor to have him on the podcast anda great way to kick off Season Two. Remember to subscribe via the annoying pop ups or the Hello Bar at the top of this page to get notified of the next podcast and to the Hemos Unite Playlist on YouTube for general Hemo Stuff happening in our little corner of the Hemo World.
Find L.A. Here:
Get Hemolife swag!!!
Send me some comments, I love to hear your stories and suggestions!
Arizona Hemophilia Association: http://www.arizonahemophilia.org/ and their Facebook Page: https://www.facebook.com/AZHemo Salsa Challenge FB: https://www.facebook.com/salsachallenge/?fref=ts San Diego (HASDC) http://hasdc.org/en/home/ Hemophilia Alliance …
This is one of the BEST Bleeding Disorder Days I have ever attended. You all know that our team (especially …
Another installment of YouTube Happenings. Please subscribe to The YouTube while you are there and give the video a thumbs up if you want more 🙂
Check it out! This awesome Facebook Group is having a Post Holiday Party and I will be there with …
I hope to see you all the my favorite charity’s holiday party! RSVP now! Spaces are running out 🙂
See what Hemos Unite has been doing lately! If you are in the Southern California area we do our own educational dinners and workshops, so sign up to be notified of our stuff!
Thanks Novo Nordisk for sponsoring our awesome dinner!
Stuff I talked about in the video:
SoCal Foundation Events – Hurry there is one this weekend! Thanks Michelle for taking over and creating all the cool stuff for the community.
Hemophilia Alliance of Orange County Donate here! You all know this is my favorite Hemo group! The surf event that they did with Mauli Ola Foundation will be going up soon 🙂 They had professional surfers come down and teach our Hemo kids how to surf!!!! Awesome!!!!!
Donate to Tubie Friends! If you don’t have one yet, this really relped my little guy feel like a regular kid with Sam his stuffed dog with a port. I donate to them every month.
Send me a request for Barb’s phone number if you want to talk to her about what you are going through. Sometimes you just need to talk. I will private message you her phone number
Season Two of the podcast will be coming soon. Click here to catch up on season 1.
Subscribe to the Hemos Unite Playlist on our YouTube