Hemos Unite Goings On

See what Hemos Unite has been doing lately! If you are in the Southern California area we do our own educational dinners and workshops, so sign up to be notified of our stuff!

 

Thanks Novo Nordisk for sponsoring our awesome dinner!

Stuff I talked about in the video:

SoCal Foundation Events РHurry there is one this weekend! Thanks Michelle for taking over and creating all the cool stuff for the community.

Hemophilia Alliance of Orange County Donate here!¬†¬†You all know this is my favorite Hemo group! The surf event that they did with Mauli Ola Foundation will be going up soon ūüôā They had professional surfers come down and teach our Hemo kids how to surf!!!! Awesome!!!!!

Donate to Tubie Friends!¬†If you don’t have one yet, this really relped my little guy feel like a regular kid with Sam his stuffed dog with a port. I donate to them every month.

Send me a request for Barb’s phone number if you want to talk to her about what you are going through. Sometimes you just need to talk.¬†¬† I will private message you her phone number

Season Two of the podcast will be coming soon. Click here to catch up on season 1.

Subscribe to the Hemos Unite Playlist on our YouTube

 

 

August Lookback on Vlog

This month has been CRAZY! So much personal stuff happening, so I apologize for not talking to you in a while. Here is a little recap of the stuff we have been able to attend in SoCal. I hope this inspires you to get out and get involved in your community or a charity that you would like to support. 
 
I truly believe that if everyone just put out just 1% more effort then they are doing, the world would get better and better. Find a cause you are passionate about and Get Involved! You will make a difference in someone’s life – I guarantee it.¬†
 
If you would like to support my favorite charity, please go to haoc.org and donate whatever you can. I have recurring donations to them, Tubie Friends: http://www.tubiefriends.com/ and Hope For Paws http://www.hopeforpaws.org/

 
Stuff coming up:
 
Saturday Sept 19:
 
Sunday Sept. 20: 
Shaka Surf Event with Hemophilia Alliance of OC and Mauli Ola Foundation!!!! Register here–>¬†¬†http://www.haoc.org/surf_event
 
 
Sat. October 3:
The Coalition for Hemophilia B for a meeting in Anaheim, 8am-4pm. Breakfast, lunch and snack will be provided and the kids get a day trip to Disneyland!!
 
Gas and tolls are reimbursed and parking is paid for compliments of the Coalition for Hemophilia B (please keep your receipts) to Register: http://coalitionforhemophiliab.org/ 
 
Oct. 9-10:
Save the Date for Randy’s Womens Education Days! Call her to RSVP – her number is in the sidebar ūüėČ
Credits:
Music:
Amazing Plan – Silent Film Dark by Kevin MacLeod is licensed under a Creative Commons Attribution license (https://creativecommons.org/licenses/by/4.0/)
Marvin’s Dance, by¬†Silent Partner
 

Episode 23 The AMAZING Amberly

@hemosunite (2)

You are going to fall in love with this amazing lady. Her hemophilia story is one that has changed so much from finding out the diagnosis and how it is managed today, you will love the growth and it will inspire you to take control of your situation.  She is amazing, inspiring, funny, smart and I am so thankful that hemophilia allowed me to meet her. You will learn some great life tips from listening to her on this pod.

She is inspiring as a business woman as well. She is the VP of Aida Cosmetics, which I now love – do you want to know why? Beacuse they help our community by teaming up and trying to help raise awareness for our community and their stuff looks AWESOME.

My favorite thing about Amberly is her outlook on life. ¬†She thinks ¬†so positively and you can just tell that she is a happy, aware, confident awesome lady. ¬†She truly makes a concious effort to conquer the obstacles that are thrown at her. I just love her…have I said that already?¬†She urges all new moms, everyone actually, to do your research, ask questions, make sure you are always learning and taking charge of your own life. ¬†I know you will enjoy this pod and please leave a comment below to let us know how much!!!

Remeber to let me know if you will be joining us for dinner and some Hemo education at Roys in Pasadena on August 9th.

Links mentioned in pod:

Access Health Association 

Sweet Hill Cookies

Amberly’s Instagram

AidaCosmetics.com 

Chat with Amberly:

Amberly’s Instagram

viamberly@gmail.com

 

 

 

Weekly Dose of Hemos Unite

It is that time again! A look back on the week in vlog, just what you always wanted.

If you want to get on the list for Randy’s super cool event call her now and let her know. ¬†805.402.5952

Remember to sign up for notifications from Hemophilia Alliance of Orange County!

We will see you all at the beach on July 12!

Weekly Update for HU!

Hi everyone – We are going to continue the weekly vlog on YouTube and really could use a name for it. Can you help me? Leave some ideas in the comments ūüôā Be nice!!

There is still time – but only a few days – to apply for HeroPath, so hurry and take advantage of this awesome program!!!

Episode 22 Renaissance Man Josh

I met Josh last year through Facebook and are working on a nice little friendship. He is quite possibly one of the nicest people I have ever met. He is so kind and knowledgeable and willing to give of his time and energy. He and his wife are very special people in my eyes. I gotta get her on the pod, by the way – she is a firecracker. Hi E!

josh episode 22

Josh was born in 81 is a a Severe A Hemophiliac. He lives life to the fullest every day. He has many hobbies, reptiles, snakes in particular, electronics, fire dancing, cars and the list goes on. Through his experience with his hobbies, he gives back to our community.  There is a deep wisdom that someone so young is in possession of.  I love it when he talks about what fear stems from when we are talking about the educational shows he does with snakes.

Bleeding Disorder Foundation of Washington

Camp I-Vy

Contact Josh:

His Facebook

or email Joah at pythonjosh@gmail.com

Episode 21 Jeffrey Leiken and HeroPath

I am thrilled to intoduce you to Jeffrey Leiken from Evolution Mentoring. This guy is a bad ass and I absolutely love his message and how he sees relationships and LIFE. ¬†I was so excited that Novo Nordisk also saw how amazing he is and decided to bring his expertise to the hemophilia community. Jeffrey created¬†HeroPath‚ĄĘ ¬†for his personal practice and created added benefit of a coaching program and tailored HeroPath‚ĄĘ ¬†just for us! HeroPath‚ĄĘ ¬†is an empowering program that offers life coach and peer support to help teens ages 16-19 and adults ages 20-25.

Copy of HeroPath Logo

Novo Nordisk and Jeffrey¬†partnered¬†up in 2014 and are continuing to grow the program this year. HeroPath‚ĄĘ focuses on helping participants grow their skills for success in many areas. It isn’t a self esteem “Peak Experience” rah – rah pump up and then no real take aways. This is the real deal. You can learn REAL skills you can apply to your real life. I wish I had something like this – you guys are so lucky! They added a Spanish speaking coaches and intrepreters¬†for those of us who excel communicating in Spanish, expanded the age range and doubled the participant limit for 2015.

APPLY and if you are selected, you head off to the kickoff weekend in Philadelphia, PA, for an experience that can make a real difference in your life. You will need to enroll in NovoSecure first and then fill out the application.  the dealine is the last day of June 2015 for this year Рso hurry up!

I encourage all people with any type of Hemophilia, ages of 16-25 who live in the United States to apply for this awesome opportunity. Just go for it Рwhat if you change your whole life by just taking a chance on believing in yourself?

Jeffrey on YouTube talking about HeroPath last year

Evolution Mentoring

Novo Nordisk Programming

Application Process:

1st register for Novo Secure,¬†then fill out the application, and good luck! Remember to do it now. The dealine is looming and you don’t want to miss out.