Episode 12 Catch Up with Rebecca From Episode One!

In Betweeisodes are now part of the programming here at HU. We will be doing quick catch ups with past guests, and giving letting you get to know everyone a little more. These are quickies. We will still do a longer chat with cool people in the community once a month, but people are asking for more, so we are starting with some quickies.

Rebecca from Episode One and I have become Hemo Besties (as seems to happen quickly in the community) and we are working on a lot of ‘stuff’ together. Here were are just catching up and talking about the dinner that we had – Thank you Bayer!!! -the BelieveDigi Powering Through Panel and the beginnings of a Hemo group run?

RSVP for the Los Angeles Zoo trip with us on Feb. 3 via comments, twitter or Facebook

RSVP to the next Hemo Moms Unite Dinner in Rancho Cucamonga via comments, Twitter or Facebook

Leave a comment below if you want to join some group exercise activities!

InBetweenisode 11.5 with Patrick James Lynch

NCHS PT SoCal short link

Powering through event from Believe Digi on Saturday! The fourth installment of the series which has been done all over the United States.  Patrick and Believe Digi bring together people from the Hemo community as well as others in the fields of interest for all humans! Really excited to support Patrick and SO honored that he asked me to be a part. This guy has some fantastic ideas and I think I love all of them.

Joel Stein and his Theme Song

Solar Studios

To Register for the FREE Event

Rebecca Berenson

Patrick Droney

PJLynch’s Twittah 

Stop the Bleeding FB

Matti Vann

 

Episode 11 Candace Clifford

Candace is  one of the coolest ladies I have ever met. She is fiercely intelligent, beautiful, a strong advocate and really knows her stuff.  They are a military family and the ins and outs of getting proper care with base doctors is interesting and another example of how we all have different stories and experiences in this crazy bond of Hemophilia we have. Hemophilia runs in her family, but it wasn’t talked about when she was growing up.  Even though she knew it ran in the family, she did not know that it was a possibility that her kids may have Hemophilia. The family history and story of her finding out how Hemophilia may affect her is so interesting. I actually learned so much from this chat.  Her youngest has Hemophilia B, which is rare, and he is a bleeder. This awesome mom fought to get her child on new medication because she is very aware and self educates. Lesson – keep fighting for your kids!!!!

After listening to Candace, I feel SO LUCKY with my son’s birth. We did not know there was any possibility of Hemophilia and I was in labor for 36 hours before we did a C-section. He could have had major head trauma, and thankfully, there was none. Candace’s boy had a LOT of bleeds when he was a a little guy and there were a LOT of E.R. visits.  The family had to fight for the port, fight for the factor, fight for the correct meds and they continue to fight to do what is right for their kids.

She has a burrito stealing dog who talks throughout the episode, so you will come to love this pup as well as Candace.

Mentioned in the pod:

Hemo Moms Unite Dinner

Powering Through Event on Jan 17 Registration

Joel Stein

Hemophilia B

BeneFix

Hemophilia in the 1950s

Dr. Marion Koerper PED/ONC UCSF Medical Center

Dr. Courtney Thornburg, Rady Children’s Hospital 

Factor Support Network and Randy Desantis thanks for introducing us Randy!

504 Plan

PSI  – I Love PSI!

 

To get in contact with Candace:

clifford02@gmail.com

 

Episode 10 Vaughn Ripley

I feel so blessed to have met Vaughn. What an inspiration! His energy, outlook and story are amazing. He is a triathlete, published author, blogger, speaker, musician and inspiration to many. He is a “Hemo-lebrity” in our community and I could talk to this guy all day. I was so energized after our chat and I am so excited to see what he does next.

I really appreciate Vaughn’s honesty, bravery and authenticity. He is so comfortable in his own skin and not only is he an inspiration to hemophiliacs and HIV affected people, he is an inspiration to just plain old people. I know you will enjoy hearing from Vaughn and will want to get in the gym and start strengthening up your muscles, be an engaged parent, make the most of your 16 hours, eat better and just BE better. I love this guy and I need him in my life, so will you after this.

Mentioned in the Pod:

Barry Haarde

Men’s Health Cover Battle on Fox5

Noah Galloway

NSPA

Vaughn’s Video and Survival Pie

Kaizen

 

More Vaughn!!

Vaughn on Facebook, personal page

Vaughn’s Author page on Facebook

VaughnRipley.com

Vaughn’s Tweets @VRipley send him a tweet about hearing him here!

Vaughn’s LinkedIn

Vaughn’s YouTube

Buy the Book!!!!

Episode 9 New York Times Bestseller Barry Lyga!

I can’t believe Barry was so kind to let us peek into his world with an interview for Hemos Unite! This is a pretty cool guy, he has made me a super fan and I am buying everything he has created. Literally.

This is a great chat, not necessarily about Hemophilia, but more about this smart, entertaining, accomplished writer and his work. He has written the widly popular Young Adult fiction books, the I Hunt Killers series. There are several short stories to satiate the hungry fan as well. One of them, Blood Boy, is a portion of Howie’s story. Howie is the Hemophiliac Side Kick to the main character, Jazz. What is incredibly unique about this e-book, besides an author giving his fans more through additional awesome content? For the rest of the year, all the proceeds from Blood Boy will go to the Adam Lynch Award. How cool is that? I am also gifting out 10 copies of Blood Boy to the first 10 reviews on iTunes or comments here on the website.

Mentioned on the pod:

Baxter Event from Randy (805)402-5952

Awesome Event for Hemos Unite!

Season 4 Stop The Bleeding

The Astonishing Adventures of Fan Boy and Goth Girl

Patrick James Lynch and Believe Digi

Blood Boy

HANY

Adam Lynch Award

Hollywood 

UnSould

4th Book In Barry’s I Hunt Killers Series

Vaughn Ripley

 

More Barry Lyga:

Barrylyga.com

Barry’s Twitter

Barry’s Facebook

Tumblr

 

Get the books! Local Independent Bookstores, Barnes and Noble – I am hooked!