Giovanni is so passionate. He is affected by hemophilia and is heavily vested in the community and making it stronger. I am fortunate to have met and learned more about him this year and I am genuinely impressed with how knowledgeable and helpful he is. This guy has some great ideas about the future of California and I see him making a great impact on the future of hemophilia/bleeding disorders as a whole. I really admire how much he does to support the community. Thanks for giving back Gio!
You will hear how much he cares about ensuring our kids are being supported and respected as the future leaders of our community. Maybe after hearing him you will want to volunteer for the camps or just put yourself out there for someone who needs it.
Gio’s quote when I asked him for one for the pod…its a good one
“He who is not courageous enough to take risks will accomplish nothing in life” – Muhammad Ali
Mentioned on the Pod:
Talk to Gio:
or call him – he said I could plaster his number all over – but reach out to his FB page or text/call me and I will give his number to you. Since this goes out the the general population, you can see how I would like to have a tiny bit of privacy for him.
This podcast is generously sponsored by bryanmichaeldesign.com. Bryan is a freelance graphic designer, photographer and videographer working in Ventura County. His goal is to connect people and inspire ideas onto paper or film. Visit bryanmichaeldesign.com and make your next project a creative solution. Thanks Bryan!
This guy is AWESOME. He was born a country boy and grew up on a cattle ranch (my dream is to live out in the middle of nature and have a retreat for all my friends to come together) and was misdiagnosed as a child. He did get the correct diagnosis (thankfully) early on and grew up with amazing mentors to lean on. He learned how to channel his emotions and anger to do something positive and take on life with gusto.
He encourages those of us with struggles to reach out. Reach out to him, to the Facebook groups, anywhere you can to make a connection. It is a small world and the guys that have been through it want to help you. I encourage you all to register for Beau’s HF Adventure Connections program. This is awesome. Check out the links for pictures to see all the fun you will have.
I am so excited to introduce Christa to you all. Many of you in Northern California already know her and her family. She lost her father and stepped away from the community for a while. She became a mom and her son has hemophilia. She decided to come back and of course, she was welcomed back with open arms. She realized that she also had some concerns about her self care. So what is a mom to do when she grew up with an active awesome dad who helped the community, a son with Hemophilia and has some questions? Well…she starts a huge movement for women bleeders. She created The Female Factor, a group for women with questions and concerns for their own self care. Of course, what would any fierce mama do?! Can you tell – I like this woman? She is definitely part of my tribe. She saw a need and made something GREAT happen. You go Girl. Her enthusiasm is contagious and her loving nature shines through. You are going to want to reach through and hug her.
Thank you Jen & Company for sponsoring the podcast! Jen and Company empowers women and girls to live a life more awesome. Check out the site and tell her Hemos Unite sent you!
I decided to chat with Patrick about the irresponsible, ignorant comments made during the airing of the Secrets and Lies, a dramatic TV show by ABC studios. He is MUCH more eloquent than I, but we thought that I should put this out to the community to also gain some more global exposure. So our listeners out there in Australia, Turkey the U.K., etc, please feel free to help us.
Forgive the audio quality on this – our internet connection was terrible and I kept loosing Patrick and the audio.
Hemo Friends – Private Facebook Group, but you may request to be added, if affected
Call to Action:
Here is a list of some (east coast?) sponsors (from a post from a mom in our wonderful community – thank you!) you may contact, tweet and request they help in our call for apology. I suggest going through a direct message at first unless you are very respectful to the sponsors, as they absolutely do not know what is said suring a TV show and have no control over it. They do, however, have a voice and I am sure somewhere in this list of companies – someone knows someone with Hemophilia and can help us:
Progressive Insurance FaceBook
Apple (i-watch) Twitter
Little Caesar’s Facebook Twitter
Chase Facebook Twitter
T-Mobile Facebook Twitter
Lipton Sparkling Tea Facebook Twitter
Staples Facebook Twitter
Subaru Facebook Twitter
Ford Facebook Twitter
Candy Crush Soda Facebook Twitter
PA Lottery Twitter
Chantix a Phizer drug
Zyrtec Facebook Twitter
Verizon Facebook Twitter
Rimmel-Wonder Lash Mascara Facebook Twitter
Bleu de Chanel from Macy’s
GMC Facebook Twitter
Walgreens Facebook Twitter
TJ Maxx Facebook Twitter
Nissan Facebook Twitter
Raymor and Flanagan
Beggin Strips Twitter
ABC Family Network Facebook Twitter
Ben Sherwood, President of Disney ABC Television Group Twitter
If anyone had any others, from other regions, please send to me and I will update
Did you know there is a confidential anonymous hotline at the Hemophilia Council of CA where you can bring ANY (well, not medical advice) issue to their attention? So if you are looking for referrals, have a complaint, or an issue that is not being resolved, you can call in and if there are enough of the same issues, the Council and state lobbyists will step in and work toward a solution. The one operator who takes the calls is the only one to hear the issues and is committed to protecting the identity of all callers. If she is not there (who works 24 hours a day?) she will get back to you if you leave a phone number. 1-888-914-744
This lady is so cool. We met this year through Nurse Jane from Episode 7 and have become fast friends. She is a single mom with 5 kids and she is an awesome mom. I have seen this in person. She shares her story, “You Won A Free Trip To Hawaii”, which is a great title and the beginning of her journey with this rare disorder. She does so much and helps a lot of people in the community. I just love her. She is incredible, a master swimmer, a fantastic mom, a great friend and a true ray of sunshine for anyone who knows her.
Mentioned on the Pod:
I bugged my buddy Matt to come on and give us some details about the super cool Internship that Bayer is running. He went through the internship when he was in college and after hanging out with this guy for a while, I have heard him refer to this program as a great time in his life where he learned years of knowledge and grew professionally and personally. The deadline is coming up, March 13th. So head over and apply. Go. Now!
contact me if you want Matt’s phone number – I decided to not broadcast that, but I am happy to give that to you if you are interested in learning more.
Warning: Matti let’s some colorful language out – all in the spirit of fun. It’s all jokes people. Jokes and ear muffs. That being said, you know I love me some Patrick James Lynch. I am just so impressed by how articulate, intelligent, talented, hilarious and NICE this guy is. I am so psyched that he is in L.A. now (except, he is never in L.A) and we have the opportunity to collaborate and support each other and the community. So, we decided to do a regular segment each month and just catch up on what he has going on, because it is fun to talk about Hemos, Powering Though projects, High Bars, Documentaries, Scoops, Scoop and a half – whatever it takes, Patrick’s insane cussing problem, post it obsession, paper planners and figuring out a name for this new series of Shoot The HooHa.
Powering Through at Solar Studios